senate resolution no.169

Senators Nesbitt, Bayer and Santana offered the following resolution:

A resolution to recognize September 1, 2022, as TBR1 Syndrome Awareness Day.

Whereas, The TBR1 gene is on the second chromosome and is critical for brain development; and

Whereas, TBR1 gene variations present in different ways though all have some degree of cognitive impairment; and

Whereas, Individuals with TBR1 syndrome may have physical or cognitive delays, mobility issues, impaired vision, seizures, or neurodevelopmental difficulties; and

Whereas, Many of the individuals with TBR1 syndrome are children. TBR1 syndrome cases are primarily "de novo" meaning the variation in the gene is not inherited. There are currently no known causes; and

Whereas, With around 100 identified cases worldwide, diagnosis of variations in the TBR1 gene are new developments; and

Whereas, Families of TBR1 syndrome individuals around the world are organizing the first ever TBR1 Syndrome Awareness Day on September 1, 2022; now, therefore, be it

Resolved by the Senate, That the members of this legislative body recognize September 1, 2022, as TBR1 Syndrome Awareness Day.